Living with Brittle Bone Disease at 10: Her Unexpected Sense of Humor! Her Mom Has Had 200 Fractures!

A big thank you to Héméré and her mom for visiting the LEGEND studio! Both of them have brittle bone disease. At just 10 years old, Héméré has already suffered 14 fractures; even the simplest everyday movement can be life-threatening for her. We talked about their daily lives, the risks associated with the condition, their future, and Siméon—Héméré’s twin brother, who also has brittle bone disease.